September 18, 2014

Our Son's Update

Wanted to update you on our son Kevin, who is waiting on a kidney transplant.  He is still in the search for a match; his brother may be part of a 3 way match, since his kidney isn't a great match, then he can give his to someone he does match with and the person that would be a match for Kevin would give his to our ill son.
Favorite Restaurant
              There is a Fund Raising Update link on their blog that gives information, if anyone would want to help them at this point.  The basic price of the surgery is 260,000$ right now and with Obamacare changing things for those waiting on a transplant list, he now has to raise 20% of that price.  I am SURE more and more ill patients will be finding themselves in this poorly planned coverage and situation.  It certainly DID NOT have to be like this for people.....not here in the good Ol' USA...but times have changed and people who thought they had the answers, didn't and don't.  So, unless each State can change some laws and coverage this is what we will see and hear about more and more.
  He is young enough to fall into the area of getting a transplant.....those that are "older" I am sure will have a more difficult time.  He has also found out that no one really knows how this "care" works and who is taking care of what....the more people he calls, the more confused everyone gets.  So, they just went ahead with the fund raiser....he and his wife have no access to this fund; it is all handled professionally and accounted for.  To protect them and the people who may decide to contribute.
Last Year At Easter
Kid and Him with LP Quilt
   Thank you for taking the time to read about it.  He is on Peritoneal Dialysis with a Cycler at night now....so, he is free of dialysis during the day....he has had some tough months but recently has a routine with his care.  He only has the last 6 months left of his Masters' Study at IU, but had to put it on hold last year due to his health and energy level.  He can only begin it in January of the year....the department he is in understands his plight but it would be such a gift to him to have the transplant work out soon and be ready "to roll" with his study in January and then Graduate and get on with his life and care of his family......he went to Bloomington 5 years ago and completed his Bachelors' Study in Informatics and is pursuing his Masters' in that same subject.  IU is the best University in America with that sort of degree.
Older Brother Willing to Transplant
   He and his family are amazing and keep staying focused.  May God be with them every minute of every day and bless them each doubly.
  I have offered what I can do best....to donate a Quilt to be Raffled for his fund......waiting to hear if that is possible at this time......either way,  I am !!......you know us Moms!!......
  Have a great and awesome day!!  God is STILL on the throne.  In these tumultuous times of crisis and danger in the World as we see it; my answer that I can do right now in life is to create quilts that can keep someone warm with comfort and love.
  For God So Loved the World that HE gave His only son.......as our son's become closer in a journey they never planned but God did and has.....keeping God on the throne.....

Just for fun now:
I love this pillow I found today.....so many ideas with this....check it out....Crazy Mom Quilts    so sweet!!!

  Blessings!!!




Last Years' Walk

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